Is everyone ready for Christmas????? So far I have all the presents purchased but haven't wrapped them. I also have not done my Christmas cards.... oh my!!!!
I spent last Tuesday through Thursday back in the hospital due to abdominal pains, low white blood count and anemia (the usual). My new year's resolution is to stay out of the hospital!!! After the first of the year I'll have a test done where I swallow this large capsule that is actually a camera. I'll wear a fanny pack for about 12 hours that contains the mechanism that records what the capsule/camera sees. It will check out my small and large intestine to see what in the world is going on in there. It will also check to see if there is any cancer in the small intestine. Today's technology.....
The weather here has been crazy. One day it's hot and the next day is cold. Everyone's allergies I'm sure are going nuts too. I know mine are.
Christmas will be busy this year as usual. Christmas Eve day will be spent with my mom and stepdad and my step aunt's house (she lives in the same subdivision as me). Then we'll head over to David's brother's house (luckily also in the same subdivision) and open presents and eat dinner. David's mom flew in from Pennsylvania last Tuesday. Then David and I will go to church for the Christmas Eve service (which is absolutely beautiful at our church). Christmas day we will get up and go to my grandma's for the day, then head back home that evening because David's mom is flying home the day after Christmas (we want to spend that last night visiting with her). So it'll be run, run, run.....
I finally set up an account on Facebook at my friend's urging. That website is so addicting!! I've gotten back in touch wtih many of my high school friends. I've had so much fun looking at everyone's photos. Facebook is similar to Myspace but I think a whole lot better. I don't like myspace. Facebook seems to be for an older generation like us. So if you are on Facebook or join it, email me and let me know so I can add you as one of my friends. email me at kbm927@gmail.com.
Well, that's all for now. If I don't get a chance to post again this week...... I hope everyone has a very MERRY and BLESSED CHRISTMAS!!!! And I hope Santa leaves you lots of terrific presents!
Monday, December 22, 2008
Friday, December 12, 2008
Who ever said "bald is beautiful" obviously was never bald. I think some woman came up with the phrase to soothe her husband's ego when he was losing his hair. Maybe men look good with no hair but women are another story. God have us hair to the end for a reason. As you can probably guess.... MY HAIR STILL IS NOT GROWING BACK and i'm getting really frustrated. I have even less hair now than in the picture on my prior post.
My internet has been down for over a week so I've not been able to post. It's like the world is ending when our internet goes down. We had to order a new modem.
Well, last month I spent a lot of time in the hospital. My stomach was really hurting bad and my white blood count was super low. I was in the hospital for about four days each time. My doctors put me on some new stomach medications and I'm feeling a little bit better. My energy is still lacking. I keep being told that it comes back slowly but my gosh... this is ridiculous.
I hope everyone had a wonderful Thanksgiving. I spent Thanksgiving in the hospital on a clear, liquid diet. So I imagined my chicken broth was turkey and that my jello was green bean casserole.
I'm sorry, I've got to make this posting a little more happier...... well.... my mother in law is flying in Tuesday. Lot's of cleaning to do before then. David is doing a lot of it today for me. Such a good husband. Christmas is almost here and I've done all my shopping online. Thank goodness.
The weather has been pretty cold here in Houston and we even had snow flurries the other day. Most of the day it was either snow flurries or sleet. Nothing stuck to the ground though. We never get snow in Houston so it was a nice change. I love cold weather but it makes my chest hurt where my sterum was cut open for my surgery two years ago. I can always tell when it's going to rain or when we are going to get cold weather.
I guess that's about all for now. I wish it was a happier post but just haven't been that happy lately. I thank God that I'm alive and well and in remission. I just wish He'd give me my hair and energy back soon! The good news is that thanks to all of you lovely people, I have lot's of hats and scarves to wear!!!!!!!!!!! I'm so blessed :-)
My internet has been down for over a week so I've not been able to post. It's like the world is ending when our internet goes down. We had to order a new modem.
Well, last month I spent a lot of time in the hospital. My stomach was really hurting bad and my white blood count was super low. I was in the hospital for about four days each time. My doctors put me on some new stomach medications and I'm feeling a little bit better. My energy is still lacking. I keep being told that it comes back slowly but my gosh... this is ridiculous.
I hope everyone had a wonderful Thanksgiving. I spent Thanksgiving in the hospital on a clear, liquid diet. So I imagined my chicken broth was turkey and that my jello was green bean casserole.
I'm sorry, I've got to make this posting a little more happier...... well.... my mother in law is flying in Tuesday. Lot's of cleaning to do before then. David is doing a lot of it today for me. Such a good husband. Christmas is almost here and I've done all my shopping online. Thank goodness.
The weather has been pretty cold here in Houston and we even had snow flurries the other day. Most of the day it was either snow flurries or sleet. Nothing stuck to the ground though. We never get snow in Houston so it was a nice change. I love cold weather but it makes my chest hurt where my sterum was cut open for my surgery two years ago. I can always tell when it's going to rain or when we are going to get cold weather.
I guess that's about all for now. I wish it was a happier post but just haven't been that happy lately. I thank God that I'm alive and well and in remission. I just wish He'd give me my hair and energy back soon! The good news is that thanks to all of you lovely people, I have lot's of hats and scarves to wear!!!!!!!!!!! I'm so blessed :-)
Sunday, November 23, 2008
Will my hair ever start growing back?!?! It still continues to fall out, mostly when I wash my hair. Maybe I'll just quit taking showers!!!!!!! Just kidding. Luckily my eyebrows are tattoo'd so I don't look like a total zombie. But I have to be somewhat insane anyways because I post these ragamuffin looking photos of myself online for the world to see. Hopefully people will look at the earlier photos when I had HAIR!!!! People at MD Anderson (my cancer center) tell me I should just shave off the rest of my hair like everyone else does but I'm just not sure I can do that. I keep hoping it'll quit falling out and I can salvage some of it at least. I wasn't suppose to lose this much of it!! I was only suppose to have partial hair loss as a result of my chemo drugs.
I went to see my oncologist last week. She said my hair should not still be falling out since I finished my chemo on 10/27 so she ran some blood test to try to figure out what is going on. I'm still tired all the time and am still afraid to drive. I haven't driven in months! I'm just not secure with my reaction time on the road and I'd hate to get into an accident and hurt someone. So right now my present goals are to get some hair back on my head, start driving to the grocery store and walk on the treadmill for 30 minutes a day. If I can accomplish that I'll be a happy camper.
Only three more days until Turkey day!! So looking forward to eating a leg and some sweet potatoes! Yummy!
Friday, November 21, 2008
Not much has been going on this month. My hair STILL continues to fall out. I have very little left. Anyone out there know how long the hair will fall out after chemo is finished? I'm ready for it to start growing back. I still continue to be very fatigued all day. I'm still afraid to drive because I'm so tired. I was in the hospital earlier this month for a few days because of fever and my white blood count was really low. They have me these WBC booster shots called Filgrastim injections and it worked. My WBC got up to 7 from 1.4. But i had a doctor appointment yesterday and it had fallen again so I'm not sure if the shots will become regular or not. My Sjogren's Syndrome causes me have chronic low white blood count to begin with so the chemo didn't help it much. I have to be so careful about germs and getting sick since my immune system is so retarded. It fights my good organs but it doesn't know to fight simple colds.
We had a cool front come in so the weather is lovely. Thanksgiving is next week and we plan to spend it with my mom, stepdad, stepaunt and my cousins. They live close by so it won't be too tiring for me. I get to see my cousin Brooke's adorable baby Paige and play with her. She is just too cute!
I tried making some gluten-free sugar cookies last week. They didn't turn out too good. Does anyone have a yummy recipe for gluten-free sugar cookies or gluen-free snickdoodles??? Having Celiac disease, especially around the holidays, really is a bummer. I am unable to eat all the wonderful baked desserts everyone makes.
If I don't write again before next week, I hope everyone has a wonderful, blessed Thanksgiving!!
We had a cool front come in so the weather is lovely. Thanksgiving is next week and we plan to spend it with my mom, stepdad, stepaunt and my cousins. They live close by so it won't be too tiring for me. I get to see my cousin Brooke's adorable baby Paige and play with her. She is just too cute!
I tried making some gluten-free sugar cookies last week. They didn't turn out too good. Does anyone have a yummy recipe for gluten-free sugar cookies or gluen-free snickdoodles??? Having Celiac disease, especially around the holidays, really is a bummer. I am unable to eat all the wonderful baked desserts everyone makes.
If I don't write again before next week, I hope everyone has a wonderful, blessed Thanksgiving!!
Wednesday, October 29, 2008
Great, great, GREAT news!!! I am officially in remission!!! Finally, after two years of treatment!! I can relax and heal. Thank you God and thank you EVERYONE for all of your prayers! They worked! Who ever tries to say prayer does not work is crazy. I had my LAST chemo treatment on Monday. I was suppose to have one more treatment after that one but my doctor said she was happy with my last biopsy results and didn't see the need for the sixth treatment. Yea!!! I'm so happy. My BBF Kelly W. took me to my chemo yesterday (what an experience it was for her). She couldn't believe all the IV medications that were going into me. We stayed in a hotel by the medical center with the plan on going antique shopping the following day but that didnn't happen. I woke up sick and kept throwing up through the entire day, I felt awful. She winded up taking me home around 10:30. I had a bad day after chemo day, probably the worst ever. But..... that's okay because I won't have to do it again! At least hopefully for a really long time. I know with Lymphoma that we can't say never but at least hopefully for a really, really, really, long time. Hair is really falling out today. I think my doctor must have put a little extra something in my chemo treatment this time because the after effects are definitely worse than ever before. I'll have my next biopsy in about five or six months - please pray that my doctor doesn't change her mind and make me do a followup of radiation.
We have a cool front in Houston right now and it's LOVELY!! I love the fall/winter time. We don't actually have four seasons in Houston. The year kind of goes like this - kinda cold, cool, hot, hot, hot, hot, kinda cool. Our coldest month is January. My husband did have to put the heater on last night though. Mmmmm.... can't wait to crank up the fireplace. Ours is gas, not nearly as good as wood, but it gives off a good effect at least. The cats are acting all frisky because of the weather and are driving me crazy running around and getting into everything. They are indoor cats but they can still feel the difference. My 17 year old cat is still hanging on. Every time I think it's time to put him to sleep, he starts acting all perky like a kitten. He'll probably outlive me.
I got all of my Christmas shopping done! I did every bit of it online. It was quite fun. No crowds, no standing in line, no driving. All the boxes are arriving and I think my mail lady hates me right now. She just leaves a postal box full of packages on my doorstep every day. Some arrive by UPS and FedEx. I usually try to have all my shopping done my Thanksgiving because I hate crowds. I'm crowdaphobic :-) I broke my record by having it all done my Halloween. Ya Hoo!
Well, that's all for now. Now that I won't have my cancer to talk about I'll have to think of other topics. Take care and Lots's of Love to all !!!!
p.s. check out the photo of my cute cousin at the bottom in her halloween costume!!
We have a cool front in Houston right now and it's LOVELY!! I love the fall/winter time. We don't actually have four seasons in Houston. The year kind of goes like this - kinda cold, cool, hot, hot, hot, hot, kinda cool. Our coldest month is January. My husband did have to put the heater on last night though. Mmmmm.... can't wait to crank up the fireplace. Ours is gas, not nearly as good as wood, but it gives off a good effect at least. The cats are acting all frisky because of the weather and are driving me crazy running around and getting into everything. They are indoor cats but they can still feel the difference. My 17 year old cat is still hanging on. Every time I think it's time to put him to sleep, he starts acting all perky like a kitten. He'll probably outlive me.
I got all of my Christmas shopping done! I did every bit of it online. It was quite fun. No crowds, no standing in line, no driving. All the boxes are arriving and I think my mail lady hates me right now. She just leaves a postal box full of packages on my doorstep every day. Some arrive by UPS and FedEx. I usually try to have all my shopping done my Thanksgiving because I hate crowds. I'm crowdaphobic :-) I broke my record by having it all done my Halloween. Ya Hoo!
Well, that's all for now. Now that I won't have my cancer to talk about I'll have to think of other topics. Take care and Lots's of Love to all !!!!
p.s. check out the photo of my cute cousin at the bottom in her halloween costume!!
Sunday, October 26, 2008
St. Theresa's Prayer
May today there be peace within.
May you trust God that you are
exactly where you are meant to be.
May you not forget the infinite
possibilities that are born of faith.
May you use those gifts that you
have received, and pass on the
love that has been given to you.
May you be content knowing you
are a child of God. Let this presence
settle into your bones, and allow
your soul the freedom to sing,
dance, praise and love.
May you trust God that you are
exactly where you are meant to be.
May you not forget the infinite
possibilities that are born of faith.
May you use those gifts that you
have received, and pass on the
love that has been given to you.
May you be content knowing you
are a child of God. Let this presence
settle into your bones, and allow
your soul the freedom to sing,
dance, praise and love.
Thursday, October 16, 2008
Wednesday, October 8, 2008
My oh my...... I can't believe it's been so long since I've written on this blog. Much has happened since my last post. We had Hurricane Ike come through and spent five days with no electricity. Thank God we had a mild cool front come through to help endure the heat so it was not too bad but having no electricity really is a pain in the butt. My parents did not have electricity for I think 8 days. Luckily we did not have any major damage. Just some missing shingles and some water leaks. We lost a few fence post and lots of branches. Most of our neighbors did not fare so good though so we felt quite happy with the little damage we had. Our subdivision is older so we have huge trees everywhere and many are long gone.... ripped out at the bottom. It took three weeks to get all the trees, branches and fences picked up around the neighborhood. It's unbelievable that only a category 2 hurricane could cause so much damage!
The other big event last month was I turned the big 40. I spent the day in the hospital so it was not a fun birthday. One of the big side effects from my chemo has been really horrible, severe migraines. And I had a doozie of one on my birthday. So at least I got to spend the day on some very potent pain killers :-) Actually the last few weeks I've spent some time in the hospital because of fever or migraines. Last week I spent two days in the hospital. It was a new hospital by our house and it was the worst experience I've ever had in a hospital. I left feeling worse than when I went in.
I had my fourth chemo treatment two days ago. The treatments still take about six hours and I'm there all day. I still feel nauseous and now I get the migraines but at least I still have my appetite and am not actually throwing up. But I've put on so much weight because I still have my appetite but am too nauseous and exhausted to exercise. Other bad side effect of chemo is the horrible fatigue!! Today I have no migraine so I'm doing pretty good but, boy, I can barely get out of bed. I'm continuing to still loose my hair little by little. I had to cut it again because it was thinning. I'm okay until I get into the shower and then it comes out a lot in my hands. It is really a gross feeling. Another side effect of chemo is bad day and night sweats so that was the other reason of chopping more of the hair off. The other day a person asked David if his son was okay!!! The nerve!!! I look like a boy now.... lovely. A boy with big boobs.... was the woman blind or am I just fat now? Anyways.......
I got a box of hats, scarves and caps from my beautiful Aunt Karen and her co-workers last month. It was a fun surprise. My dearest and favorite cousin, Susan, sent me this scarf thing from the show Survior that is the coolest invention in the world. Not only can you wear it like a million different ways but it is perfect for pulling your hair back to remove makeup!! I love presents!!
Well, that's all for now. Here is the latest photo of my short hairdo:
The other big event last month was I turned the big 40. I spent the day in the hospital so it was not a fun birthday. One of the big side effects from my chemo has been really horrible, severe migraines. And I had a doozie of one on my birthday. So at least I got to spend the day on some very potent pain killers :-) Actually the last few weeks I've spent some time in the hospital because of fever or migraines. Last week I spent two days in the hospital. It was a new hospital by our house and it was the worst experience I've ever had in a hospital. I left feeling worse than when I went in.
I had my fourth chemo treatment two days ago. The treatments still take about six hours and I'm there all day. I still feel nauseous and now I get the migraines but at least I still have my appetite and am not actually throwing up. But I've put on so much weight because I still have my appetite but am too nauseous and exhausted to exercise. Other bad side effect of chemo is the horrible fatigue!! Today I have no migraine so I'm doing pretty good but, boy, I can barely get out of bed. I'm continuing to still loose my hair little by little. I had to cut it again because it was thinning. I'm okay until I get into the shower and then it comes out a lot in my hands. It is really a gross feeling. Another side effect of chemo is bad day and night sweats so that was the other reason of chopping more of the hair off. The other day a person asked David if his son was okay!!! The nerve!!! I look like a boy now.... lovely. A boy with big boobs.... was the woman blind or am I just fat now? Anyways.......
I got a box of hats, scarves and caps from my beautiful Aunt Karen and her co-workers last month. It was a fun surprise. My dearest and favorite cousin, Susan, sent me this scarf thing from the show Survior that is the coolest invention in the world. Not only can you wear it like a million different ways but it is perfect for pulling your hair back to remove makeup!! I love presents!!
Well, that's all for now. Here is the latest photo of my short hairdo:
Monday, August 25, 2008
Hello my favorite people!
It is one very HOT day here in Houston. We need a nice storm.... just enough rain to cool things off and water the land. Not much has been happening. I've been feeling okay. I'm good some days and really nauseous other days. The best anti-nauseous medication is Zolfran and unfortunately I can not take it because it gives me horrible headaches. I was actually in the emergency room a few times over the last three weeks due to the horrible headaches/migraines. So my doctor gave me another "MD Anderson" only special concoction called ABH (it's a capsule containing ativan, benadryl and haldol) for the nauseousness. It works pretty good.
My hair has been thinning out in spurts. It comes out most in the shower. It seems thinner to me but my stepmom yesterday said she couldn't tell a difference. She brought me over a pot of her homemade chicken tortilla soup (yummmm.... it's good) and my dad brought me a pink harley davidson bandana cap (it's cute). Anyways - cutting my hair short was a good idea because it does look thicker and hopefully I won't have to lose it all and shave it.
David's truck is on the fritz and the a/c went out in it. He is driving my car until we can either fork out the money to get his fixed or buy him something else. With me not working, we have to be much tighter with our budget. My medical bills get thrown into a box in the bedroom..... I'm afraid to even look at them. Insurance of course doesn't cover everything.
Well, it's lunch time so I'm going to go have a bowl of the tortilla soup!
p.s. this is a photo of me getting my chemo last time and yes, my hair is that short now.
Thursday, July 31, 2008
Howdy friends ~ I got a wonderful surprise today!! My stepgrandmother (Barbara Gauthier), who is one of the most sweetest, dearest people in the world, sent me a whole bunch of scarves she had. They are sooooooooo beautiful! Is is weird to say I'm kind of looking forward to losing my hair now because I'll have such fun, pretty, scarves to wear??? Barbara is a true southern lady, through and through and such a great role model. She raised a bunch of terrific daughters (5 of them!) and a talented son and unfortunately lost her husband not too long ago. The surprise gift was nice and much needed because this morning I was feeling all whiny and wimpy and it put a big smile on my face. I do not like feeling wimpy but this week I just have not been feeling that great. I was in the hospital Sunday/Monday. With the chemo I have to take my temperature daily and if it gets to 101 then I have to go to the ER for antibiotics. I can't take the normal medications I used to take... no advil, no tylenol, no aleve, no aspirin so dealing with headaches and pain is a challenge now. My chest still hurts where the port was placed. The doctor told me it would take about 3 weeks to heal and he wasn't kidding. There is a big bump out of my skin where the port is so it looks like I have some freaky tumor or something in my chest and you can see the catheter along the inside of my neck where it meets up with my jugular. Lovely...... I think I shall also wears scarves around my neck!!!! My neck and chest is becoming full of scars. My husband has a t-shirt that says "scars are just tattoos with stories". That is no doubt. I still have that lovely 5 inch long scar down my chest where I had my thymectomy surgery and chest sawed open in 2006. None of those scar creams worked on me. I just don't wear v-neck shirts anymore. C'est la vie! I wonder which is worst... no hair, scars or wrinkles??? I think I'd have to go with the wrinkles :-)
Well, my cats are insisting that I give them my undivided attention for a while so I best go. Love to all!!!!!
Well, my cats are insisting that I give them my undivided attention for a while so I best go. Love to all!!!!!
Saturday, July 26, 2008
Tuesday, July 22, 2008
I started my next new round of chemo (R-CHOP) yesterday. Last week I had my port implanted in my chest for the chemo. I actually had a Powerport placed in so it can be used for CT and PET scans since I have a lot of those. The surgery took about an hour and I have about a quarter size triangle port under my skin (looks like a bump) and it connects to my jugular by a catheter. It took two incisions. The catheter is sewed into my jugular. This will keep me from having to poke around my veins for an IV each time I get my chemo and give labs since my veins are so tiny and roll. Yesterday's chemo session actually took about 9 hours. I was to be given four drugs but wasn't able to get one of them because my liver enzymes were way to high so I'll have to have an extra treatment at the end. The nurse told me to be prepared to lose most of my hair. It will start falling out in about three weeks. When it does.... I'll go ahead and shave it. I think it's worse to watch it fall out slowly. I will need to start finding scarves and hats to wear. No goofy wig for me! The hardest thing for me during this treatment will be to stay healthy. Chemo makes your white blood count drop and since I have chronic low white blood count, I have to be extra careful. I'm suppose to stay away from crowds, kids and unclean places. I have to go to the ER if my temperature gets to 101 in order to get antibodics. I basically have to be really careful. And my husband says I'm never careful about stuff like that so he's going to be watching over me like a mother hen.
I'll post more later ~ thanks for all the emails, posts and calls!!!
I'll post more later ~ thanks for all the emails, posts and calls!!!
Saturday, July 12, 2008
Hi people!! I hope everyone is doing well out there!! It's another agonizing hot day in Texas.... I wish it would rain today! I LOVE rain and storms. Presently I'm at my grandmother's house visiting and have been here most of this week. She lives just north of Houston so no relief from the heat here. My brother lives with her now so I've enjoyed spending time with him. But I need to get back to Houston tomorrow because my husband's mom and her husband flew in from Pennsylvania. Monday I have jury duty and will do all I can to not get picked. Since I was a probation officer for 17 years I'm not always first to be chosen luckily. Tuesday I am suppose to spend a few days with my best friend Kelly W. in Galveston at the beach at her family's condo. Busy week next week. I think my mother-in-law will be in town for about three weeks. Today I went to Bath and Body Works and got her some goodies to make up for me not being there.
I finally had my follow-up visit with my oncologist to find out the results of my last bone marrow biopsy. The really good news is that the cancer is NOT in my bone marrow yet or in my spine. I will do six more treatments of three different kinds of chemo. To make it less agonizing (less side effects) for me, the oncologist will have me do one treatment session every three weeks. So it'll take a total of 18 weeks to do all the treatment. The IV chemo medicines will be Vincristine (Oncovin/Vincasar PFS), Cyclophosphamide (Cytoxan) and Rituximab (Rituxan) again. I will have an IV port in my chest put in surgically this time since I had such a difficult time with my veins/IV's last time. I'll start the treatment after I get that put in. The treatment takes 5 to 6 hours each time (for the IV drugs to go in) and it's at MD Anderson Hospital. Anyone want to volunteer to take me???? David and my stepmom took turns taking me last time and they didn't die from boredom so it must not have been too bad. I'll keep everyone posted as soon as I get the port put in.
I hope everyone is having a wonderful summer so far! Keep in touch!! kmuhl@sbcglobal.net
I finally had my follow-up visit with my oncologist to find out the results of my last bone marrow biopsy. The really good news is that the cancer is NOT in my bone marrow yet or in my spine. I will do six more treatments of three different kinds of chemo. To make it less agonizing (less side effects) for me, the oncologist will have me do one treatment session every three weeks. So it'll take a total of 18 weeks to do all the treatment. The IV chemo medicines will be Vincristine (Oncovin/Vincasar PFS), Cyclophosphamide (Cytoxan) and Rituximab (Rituxan) again. I will have an IV port in my chest put in surgically this time since I had such a difficult time with my veins/IV's last time. I'll start the treatment after I get that put in. The treatment takes 5 to 6 hours each time (for the IV drugs to go in) and it's at MD Anderson Hospital. Anyone want to volunteer to take me???? David and my stepmom took turns taking me last time and they didn't die from boredom so it must not have been too bad. I'll keep everyone posted as soon as I get the port put in.
I hope everyone is having a wonderful summer so far! Keep in touch!! kmuhl@sbcglobal.net
Saturday, June 21, 2008
Hello, hello, hello!
For those of you that do not live in the south, be thankful. It is HOT here in Houston!!! The humidity is so high you can barely breath outside. Not to mention we have hardly had any rain at all. We have so much yard work to do but it's just too dang hot to get out there, even in the mornings and evenings. It's times like these that I wish we lived in Alaska or Oregon.
David got his MRI scan results. Great news ~ no new tumor growth. His doctor will not need to see him again until his next MRI next year. What a relief that is for us. All of your prayers worked ~ thanks!
I had my bone marrow biopsy the other day. It was nice since I got to be put to sleep this time. I'm always awake, with no sedation, when I have those things and they hurt like hell. Now I'm just sore in my hips. The bone marrow is extracted out of both hips. I basically feel like I've been kicked in the back by a horse. I've never actually been kicked by a horse but I can image that it would make your hips hurt. I'll go back to the doctor next week for my results. For the last few weeks I've been having to go in to give blood samples, not sure why. I guess I'll find out the answer to that one next week as well. I have chronic low white blood count and sometimes my WBC gets dangerously low, so that might be what they are monitoring. I always have to be super careful being around children (because they carries millions of germs and also being around sick people). My immune system does not like to fight off infections.
Since I have Celiac Disease I have to eat a gluten-free diet. I've been trying different gluten-free recipes for sugar cookies but they all taste yucky. If anyone knows a good recipe for gluten-free sugar cookies, please email it to me. kmuhl@sbcglobal.net I am CRAVING a real, Shipley's donut. There are a lot of foods I miss eating, especially donuts!
I'll post more next week. I hope all of you out there are doing great!!!
For those of you that do not live in the south, be thankful. It is HOT here in Houston!!! The humidity is so high you can barely breath outside. Not to mention we have hardly had any rain at all. We have so much yard work to do but it's just too dang hot to get out there, even in the mornings and evenings. It's times like these that I wish we lived in Alaska or Oregon.
David got his MRI scan results. Great news ~ no new tumor growth. His doctor will not need to see him again until his next MRI next year. What a relief that is for us. All of your prayers worked ~ thanks!
I had my bone marrow biopsy the other day. It was nice since I got to be put to sleep this time. I'm always awake, with no sedation, when I have those things and they hurt like hell. Now I'm just sore in my hips. The bone marrow is extracted out of both hips. I basically feel like I've been kicked in the back by a horse. I've never actually been kicked by a horse but I can image that it would make your hips hurt. I'll go back to the doctor next week for my results. For the last few weeks I've been having to go in to give blood samples, not sure why. I guess I'll find out the answer to that one next week as well. I have chronic low white blood count and sometimes my WBC gets dangerously low, so that might be what they are monitoring. I always have to be super careful being around children (because they carries millions of germs and also being around sick people). My immune system does not like to fight off infections.
Since I have Celiac Disease I have to eat a gluten-free diet. I've been trying different gluten-free recipes for sugar cookies but they all taste yucky. If anyone knows a good recipe for gluten-free sugar cookies, please email it to me. kmuhl@sbcglobal.net I am CRAVING a real, Shipley's donut. There are a lot of foods I miss eating, especially donuts!
I'll post more next week. I hope all of you out there are doing great!!!
Tuesday, June 10, 2008
Hi to everyone!
Well, I went to the oncologist last week to get my latest stomach biopsy and PET scan results. The news wasn't as good as I would have liked, but I have to remember it could always be worse. The biopsy showed cancer still in my stomach. There isn't a lot but enough that it'll need treatment again. The PET scan showed "activity" in the lymph nodes under both my arms and also "activity" in my spine. So my doctor is having me do another bone marrow biopsy (I just had one six months ago) but she said I'll get to get sedated on this biopsy - which is a relief because those dang things hurt. The results of the bone marrow biopsy will determine if I'll do radiation again or some more chemo.
Tomorrow I will go with David to see his new doctor at MD Anderson and get his MRI results. Hopefully it will show no new tumor growth. I can tell he is nervous.
I haven't been feeling well for the last two weeks so I haven't even been able to go see my cousin's new baby. I've had fever off and on so being around a newborn is not the best idea.
Not much new news other than that. I'll post more later....
Well, I went to the oncologist last week to get my latest stomach biopsy and PET scan results. The news wasn't as good as I would have liked, but I have to remember it could always be worse. The biopsy showed cancer still in my stomach. There isn't a lot but enough that it'll need treatment again. The PET scan showed "activity" in the lymph nodes under both my arms and also "activity" in my spine. So my doctor is having me do another bone marrow biopsy (I just had one six months ago) but she said I'll get to get sedated on this biopsy - which is a relief because those dang things hurt. The results of the bone marrow biopsy will determine if I'll do radiation again or some more chemo.
Tomorrow I will go with David to see his new doctor at MD Anderson and get his MRI results. Hopefully it will show no new tumor growth. I can tell he is nervous.
I haven't been feeling well for the last two weeks so I haven't even been able to go see my cousin's new baby. I've had fever off and on so being around a newborn is not the best idea.
Not much new news other than that. I'll post more later....
Wednesday, May 28, 2008
Hello everyone! Yesterday I had a PET scan to restage my cancer. I'll post the results as soon as I find out. Next week I'll find out the results of my stomach biopsy. I'm suppose to make an appointment to see the radiation oncologist to start my next go of radiation therapy.
Earlier this month I spent a week up in Pennsylvania at my mom-in-law's house. I flew up, without David, so we could spend the week shopping in the amish towns. She lives close to Lancaster. We had a wonderful time! It is so beautiful up there ~ totally different than Texas. The weather was nice and cool which was a nice break from our 100 degree heat down here. The amish are amazing people. I never get tired of looking at their farms, their absolutely beautiful children and the horse/buggies they ride in. It's a totally different world than ours. I saw one amish guy on roller blades which was a surprise. We spent one night in Intercourse, PA which is right in the middle of amish and mennonite country. Mennonites are similar to Amish but not as strict in their lifestyles. I bought lots of goodies and lots of yummy smelling candles.
My cousin Brooke had her baby on mother's day. I haven't had a chance to go see her yet. I need to take photos of her and post one on my blog.
I FINALLY got David to transfer his medical care over to MD Anderson. He has an appointment tomorrow for a MRI and will see a doctor next week. I plan to go to both with him. Please pray that the MRI shows no new tumor growth. (For those who don't know: David had a golf ball size tumor removed in 2000 and more tumor removed in 2005. He went through radiation after the last surgery in 2005). I'll keep everyone updated on his status as well. Just keep praying for him please!!
Earlier this month I spent a week up in Pennsylvania at my mom-in-law's house. I flew up, without David, so we could spend the week shopping in the amish towns. She lives close to Lancaster. We had a wonderful time! It is so beautiful up there ~ totally different than Texas. The weather was nice and cool which was a nice break from our 100 degree heat down here. The amish are amazing people. I never get tired of looking at their farms, their absolutely beautiful children and the horse/buggies they ride in. It's a totally different world than ours. I saw one amish guy on roller blades which was a surprise. We spent one night in Intercourse, PA which is right in the middle of amish and mennonite country. Mennonites are similar to Amish but not as strict in their lifestyles. I bought lots of goodies and lots of yummy smelling candles.
My cousin Brooke had her baby on mother's day. I haven't had a chance to go see her yet. I need to take photos of her and post one on my blog.
I FINALLY got David to transfer his medical care over to MD Anderson. He has an appointment tomorrow for a MRI and will see a doctor next week. I plan to go to both with him. Please pray that the MRI shows no new tumor growth. (For those who don't know: David had a golf ball size tumor removed in 2000 and more tumor removed in 2005. He went through radiation after the last surgery in 2005). I'll keep everyone updated on his status as well. Just keep praying for him please!!
Wednesday, May 7, 2008
Sorry I have not written in quite a while. Not much has been happening lately. The last few months have been pretty slow. I had my stomach biopsy this past Monday and am awaiting the results of that. If there is still cancer in my stomach then I'll do some radiation. Since I've done it before it'll be a piece of cake. I'll let everyone know the results as soon as I know them.
Today I got to take my cousin, Brooke, to the doctor. She is due to have a baby on Sunday but we are hoping she has it sooner. She feels like she is about to pop (she's going to have a BIG baby girl) and I want her to have it before Sunday because I'm flying out of town Sunday!! Please say a prayer for her and the baby (Paige). I also got to take her last week to the doctor so that's been my highlight of the last month. My life has become so boring..... I need to start volunteering or substitute teaching.
My best friend from high school, Lisa, got back in touch with me recently. She emailed me out of the blue and it's been a few years since we've seen each other. I can't wait to get together with her to catch up on things. We were cheerleaders together. How time flies....
Sunday I'm flying up to see David's mom for a week (just me, David is staying here). She lives close to Lancaster, Pa. We plan to spend the week shopping and going to lots of Amish craft shops. I can not wait! It's so beautiful up there.
Hope everyone is doing great and I hope all of you moms out there have a wonderful Mother's Day!!
Today I got to take my cousin, Brooke, to the doctor. She is due to have a baby on Sunday but we are hoping she has it sooner. She feels like she is about to pop (she's going to have a BIG baby girl) and I want her to have it before Sunday because I'm flying out of town Sunday!! Please say a prayer for her and the baby (Paige). I also got to take her last week to the doctor so that's been my highlight of the last month. My life has become so boring..... I need to start volunteering or substitute teaching.
My best friend from high school, Lisa, got back in touch with me recently. She emailed me out of the blue and it's been a few years since we've seen each other. I can't wait to get together with her to catch up on things. We were cheerleaders together. How time flies....
Sunday I'm flying up to see David's mom for a week (just me, David is staying here). She lives close to Lancaster, Pa. We plan to spend the week shopping and going to lots of Amish craft shops. I can not wait! It's so beautiful up there.
Hope everyone is doing great and I hope all of you moms out there have a wonderful Mother's Day!!
Tuesday, February 26, 2008
Great news!!
I went to the oncologist at MD Anderson yesterday and got wonderful news. The antibody chemo treatment I did back in Nov/Dec worked really well and knocked out most of the cancer in my stomach. The doctors were very pleased at how well the treatment worked. But there is still a very, very small area in the stomach that still showed cancer. Dr. Pro said sometimes the antibody chemo can take up to six months to fully work so it might still knock out that small bit of cancer. So... in May I will do another stomach biopsy and PET scan. IF the cancer is still there I will do radiation (just like I did on the cancer in my chest area at the end of 2006). She does not think I will have to do full blown bad chemo at all. At least I can keep my hair with the radiation! And I just had seven inches cut off it last week because I was anticipating bad news at the oncologist. I figured I'd cut half of the hair off now and then then the rest of it off when the chemo started. I just have not been feeling well at all the last few months and so I had a bad feeling the antibody chemo didn't work. Thank goodness I was wrong! Dr. Pro thinks my not feeling well has more to do with my rheumatology and autoimmune problems than with my cancer. I have an appointment to see my rheumatologist next month.
So... thank you all for all of your prayers! They worked!!
So... thank you all for all of your prayers! They worked!!
Friday, February 22, 2008
Just another day....
I suck at tennis. Anna Kournikova.... I definitely am not. The first time we played I fell on my butt twice. Lot's of padding there... so no harm done. David spent more time laughing at me than hitting the ball himself. Luckily the courts we go to have practice backboards as well, so I've been sticking to them for now. I actually asked a man there (he had just finished playing a match) for a couple of pointers and he winded up giving us a nice lesson and lots of tips. I still suck though. It's pretty sad that my back hand swing is better than my front hand swing.
Monday I had my stomach biopsy. I will go see my oncologist on Monday 2/25 to get the results. I'll post the results when I find out.
I was diagnosed with Celiac Disease in 2/07 and have not eaten bread in a year. I finally decided to bake some gluten-free bread in my bread machine and oh my..... warm, fresh bread.... god it was so good! My bread machine in old but it worked good enough for now. There's a new model out that actually has a "gluten-free" cycle on it that I really want. It's the Breadman TR875 2-Pound Breadmaker - pretty inexpensive on amazon... hint, hint.... my birthday's coming up. But of course I already sit around the house eating chocolate, drinking diet cherry chocolate dr. pepper..... and the last thing i need to put in my mouth is BREAD!!!!! But oooohhhhhh.... it was so yummy. There are so many things I miss eating - like Shipley's glazed donuts.... sigh..............................
Monday I had my stomach biopsy. I will go see my oncologist on Monday 2/25 to get the results. I'll post the results when I find out.
I was diagnosed with Celiac Disease in 2/07 and have not eaten bread in a year. I finally decided to bake some gluten-free bread in my bread machine and oh my..... warm, fresh bread.... god it was so good! My bread machine in old but it worked good enough for now. There's a new model out that actually has a "gluten-free" cycle on it that I really want. It's the Breadman TR875 2-Pound Breadmaker - pretty inexpensive on amazon... hint, hint.... my birthday's coming up. But of course I already sit around the house eating chocolate, drinking diet cherry chocolate dr. pepper..... and the last thing i need to put in my mouth is BREAD!!!!! But oooohhhhhh.... it was so yummy. There are so many things I miss eating - like Shipley's glazed donuts.... sigh..............................
Tuesday, February 5, 2008
Nothing new....
My next stomach biopsy is scheduled for February 18th. I'm actually looking forward to that so I will find out if the antibody chemo treatment worked. I should hopefully have the results on the 25th when I go back to see my oncologist. Keep your fingers crossed.
David and I have been getting very lazy and both of us are gaining weight..... all that chocolate and Mexican food (not eaten at the same time of course)! So we bought some tennis rackets last night and plan to start playing at the courts located close to our house. There are also backboards there so David can get a more intense workout and I will be able to take it easy. I can not imagine how sore we will be after the first time! I have not played tennis since Iwas in college. David and I will probably spend most of the time bent
over laughing our butts off at each other though.
Diet Dr. Pepper is my lifesaver. They have a new flavor.... cherry chocolate!! Oh MY gosh - it is soooooo good! Truly heavenly.
Well... I hope everyone is having a great new year so far. It's already flying by. I can't believe we are already in February. I can't believe I'll be 40 in seven months!!! OH NO!!!!!!!!!!!!!!!!!!!!!!!
Thursday, January 10, 2008
I'm officially retired!
Not bad for only being 39, huh? Well.... as of December 31, 2007, I was approved for early medical disability retirement from my job. The amount of course will not be as much as if I were to actually normally retire (which would have been in 10 years) but it will help out somewhat. I haven't had an income since September when I took my leave of absence from work so the retirement check will be welcomed! My medical bills are absolutely enormous.... unfortunately insurance only covers 80%. After over 16 years of working with the department I'm still having a hard time getting used to being at home. Some days I want to just stay in my pajamas all day and read or watch movies! But I have to get myself motivated and do stuff around the house.
One of my cats, Jax, has a new addiction. He loves Ruffles potato chips and Cheetos. He keeps stealing the bags out of the kitchen. He'll drag the bags to my closet to hide them from me! Strange cat......
Wednesday, January 9, 2008
Happy New Year!
Okay..... I'm not doing too well right now with keeping up with this blog. Nothing new has been happening so I haven't had much to write about. I hope everyone had a very Merry Christmas and a wonderful New Year. David and I spent a quiet Christmas in San Antonio this year. It was nice and relaxing. David lost a very dear uncle the week before Christmas so it's kind of been tough for him. His Uncle John was David's golfing buddy and was a very special man.
I was supposed to have gone to my oncologist last week but wasn't feeling well so had to reschedule. So I'll go next week for my checkup. We'll probably still have to wait a few months before we do another stomach biopsy, which is fine with me because I'm currently enjoying the break from treatment.
I was supposed to have gone to my oncologist last week but wasn't feeling well so had to reschedule. So I'll go next week for my checkup. We'll probably still have to wait a few months before we do another stomach biopsy, which is fine with me because I'm currently enjoying the break from treatment.
Subscribe to:
Posts (Atom)